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    Ice Bucket Challenge funds gene discovery in ALS (MND) research(2)

    1
    2016-07-29 14:57China Daily Editor: Yao Lan

    2014年夏天,人們往頭上澆冰水為漸凍癥募捐的視頻席卷了社交媒體.

    More than 17 million people uploaded videos to Facebook, including many celebrities who rose to the challenge, which were then watched by 440 million people worldwide.

    超過1700萬人在臉書上傳了視頻,其中包括許多接受了挑戰的名人.全世界有4.4億人觀看了相關視頻.

    冰桶挑戰

    ALS冰桶挑戰賽(ALS Ice Bucket Challenge)簡稱冰桶挑戰賽或冰桶挑戰,要求參與者在網絡上發布自己被冰水澆遍全身的視頻內容,然后該參與者便可以要求其他人來參與這一活動.

    活動規定, 被邀請者要么在24小時內接受挑戰, 要么就選擇為對抗肌肉萎縮性側索硬化癥捐出100美元.該活動旨在是讓更多人知道被稱為漸凍人的罕見疾病, 同時也達到募款幫助治療的目的.

    僅在美國就有170萬人參與挑戰,250萬人捐款,總金額達1.15億美元,這可能是為某種疾病或緊急情況捐助最多的款項.

    What is amyotrophic lateral sclerosis (ALS), also known as motor neurone disease (MND)?

    fatal, rapidly progressive disease that affects the brain and spinal cord

    attacks nerves that control movement so muscles refuse to work (sensory nerves are not usually affected)

    攻擊運動神經,導致肌肉無法工作(感覺神經通常不受影響)

    can leave people locked in a failing body, unable to move, talk and eventually, breathe

    患者受困于衰弱的軀體,不能移動,不能講話,最終無法呼吸

    affects people from all communities

    所有人群都可能患病

    scientist Stephen Hawking is best-known person with the disease

    科學家史蒂芬•霍金是最有名的漸凍癥患者

    kills around a third of people within a year of diagnosis and more than half within two years

    確診后一年,約有三分之一死亡病例,兩年內死亡數過半

     

    英文來源:BBC

     

      

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